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Fabry disease: Advocacy group seeks Health Ministry’s intervention

Patients of Fabry disease in India are calling for equal recognition under the National Policy for Rare Diseases 2021. Advocacy group, Lysosomal Storage Disorders Society of India, have urged Union Health Minister Mansukh Mandaviya to provide guidelines for CoEs to treat all notified disease conditions, including Fabry disease. The rare disease is caused by enzyme deficiencies affecting the functionality of the heart and kidneys, with the diagnosis rate remaining low due to low awareness.

G20: 2nd Environment and Climate Sustainability meeting to start in Gandhinagar on Monday

The first meeting of the ECSWG was held in Bengaluru from February 9-11. The third meeting will be held in Mumbai (May 21-23) and the fourth in Chennai (May 26-27). The ministerial meeting is expected to be held on July 28 in Chennai.